COGR 275: Cultures of Care

Readings:

• Liat Ben-Moshe, Decarcerating Disability, "Introduction: Intersecting Disability, Imprisonment, and Deinstitutionalization and "Chapter 4: Why Prisons are Not 'the New Asylums'"
• Monique Tula, "People Power and the Original Harm Reductionists," in  Shira Hassan, Saving Our Own Lives 
• Caroline Sufrin, "Reproduction and Carceral Desire" (chapter 6) in Jailcare
• Joy James’s "The Captive Maternal is a function, not an identity marker”

and if you have time:

• Nirmala Everels "“Scenes of Subjection” in Public Education: Thinking Intersectionally as If Disability Matters"  

Alternative/Additional Reading:

• Dustin Gibson, "What's Up WID | What is Disability Justice?" (Talk)
• Puar, Chapter 2 & 3, The Right to Maim: Debility, Capacity, Disability 
• Subini Ancy Annamma 2018 The Pedagogy of Pathologization: Disabled girls of color in the school-prison nexus
• Sherene H. Razack, "Timely Deaths: Medicalizing the Deaths of Aboriginal People in Police Custody"
• Ben-Moshe, Chapman, Carey, Disability Incarcerated: Imprisonment and Disability in the United States and Canada
• McCauley "The Cumulative Probability of Arrest by Age 28 Years in the United States by Disability Status, Race/Ethnicity, and Gender"

Care and the Boundaries of the Nation-State

Readings:

• Eva Feder Kittay, "The Global Heart Transplant and Caring across National Boundaries"
• Yasmin Gunaratnam "Death and the Migrant – An Introduction," Death and the Migrant: Bodies, Borders and Care.
• James Quesada , Laurie Kain Hart & Philippe Bourgois, "Structural Vulnerability and Health: Latino Migrant Laborers in the US"
• Martha T. McCluskey, "Subsidized lives and the Ideology of Efficiency"
• Kyeong-Hee Choi, "Impaired Body as Colonial Trope: Kang Kyo ̆ ng’ae’s 'Underground Village'"
• Robert McRuer, "Taking It to the Bank: Independence and Inclusion on the World Market"
• Kalindi Vora, "Limits of “Labor”: Accounting for Affect and the Biological in Transnational Surrogacy and Service Work"
• Stacy Clifford Simplican, Ch 1 & 5, The Capacity Contract: Intellectual Disability and the Question of Citizenship (University of Minnesota Press, 2015)
• Warren T. Reich, "The Care-Based Ethic of Nazi Medicine and the Moral Importance of What We Care About"  

Alternative/Additional Reading:

• Adriana Petryna and Arthur Kleinman, "The Pharmaceutical Nexus" in Global Phamaceuticals eds Petryna, Lakoff, Kleinman
• Laura Briggs, "Foreign and Domestic: Adoption, Immigration,and Privatization" in Boris and Salazar Parreñas, eds, Intimate Labors-Cultures, Technologies, and the Politics of Care
  
  

Readings:

• Joe Stramondo, "Power, Vulnerability, and Institutionalization"
• Park McArthur & Constantina Zavitsanos, "Other Forms of Conviviality," Women & Performance: a journal of feminist theory, 2013, 23:1, 126-132
• Yasmin Gunaratnam (2011) "Cultural Vulnerability" 
• Ingunn Moser and John Law, "Making Voices"

Alternative/Additional Reading:

• Sara Ahmed, "The Gendered Context of Vulnerability: Coping / Adapting to Floods in Eastern India"Annemarie Mol "Care and Its Values: Good food in the nursing home," Care in Practice: Adaptable Technologies and Fragile Bodies, eds, Mol, Moser & Pols, eds.
• Sara Ahmed, "Collective Feelings Or, The Impressions Left by Others"
• Don Kulick and Jens Rydström, (2105) Ch 7 "Disability and Sexuality—Who Cares?" in Loneliness and Its Opposite: Sex, Disability, and the Ethics of Engagement
• Danielle T. Raudenbush, Health Care Off the Books: poverty, illness, and strategies for survival in urban america
• Erinn Gilson, "Vulnerability, Ignorance, and Oppression" Hypatia vol. 26, no. 2 (Spring, 2011)
• Johnnie Tillmon, “Welfare is a Women’s Issue.” Ms. Magazine (Spring 1972). 
• Park McArthur, "Carried and held: Getting good at being helped," International Journal of Feminist Approaches to Bioethics, Vol 5, No 2, Fall 2012, 162-169
• Eva Feder Kittay, "Vulnerability and the Moral Nature of Dependency Relations" from Love's Labor: Essays on Women, Equality, and Dependency
• Dorothy Roberts, "Poverty, Race, and the Distorition of Dependency" in Eva Feder Kittay and Ellen Feder, eds (2002). The Subject of Care: Feminist Perspectives on Care
• Kate Brown "Re-moralising 'vulnerability'"
  
• Isabelle Bartkowiak-Théron and Nicole L. Asquith, "The Extraordinary Intricacies of Policing Vulnerability"
• Lennard J. Davis, "Dependency and Justice"
• Martha C. Nussbaum, "Analytic Love and Human Vulnerabililty?"
  

 

       

WEEK 7 (May 18): Guest Participant: Suzanne Stolz (Univeristy of San Diego, Dept of Learning and Teaching).

Readings:

• Suzanne Stolz, "Co-Constructing Frames for Resistance: Reflections on Disability by a Daughter and Her Mother"
• Suzanne Stolz, " How we view disability and why it matters at school?" from Teacher Leaders for Inclusion

(In)Visible Illness and Unrecognized Difference

Readings:

• Elyn Saks, Chapter 19 and Chapter 20 in The Center Cannot Hold
• Allison Carey, “The Sociopolitical Contexts of Passing and Intellectual Disability,” in Brune & Wilson (eds.) Disability and Passing: Blurring the Lines of Identity (2013)  
• Susan Lingsom, "Invisible Impairments: Dilemmas of Concealment and Disclosure"
• Peta Cox "Passing as Sane or How to Get People to Sit Next to You on the Bus” in Brune & Wilson (eds.) Disability and Passing: Blurring the Lines of Identity (2013)

Alternative/Additional Reading:

• Margaret Price, Selections from Mad at School: Introduction, Chapter 1, and Chapter 2Ann Cvetkovich, Depression: A Public Feeling, selections: "Writing Depression: Acedia, History, and Medical Models"
• Amanda L. Kundrat & Jon F. Nussbaum, "The Impact of Invisible Illness on Identity and Contextual Age Across the Life Span"
• Jen R, "Invisible Illnesses, Visible Stereotypes"
• N. Ann Davis, "Invisible Disability"
• Heather Dawn Evans, “Un/covering: Making Disability Identity Legible," Disability Studies Quarterly
• Kattari, Olzman & Hanna  "“You Look Fine!”- Ableist Experiences by People With Invisible Disabilities” 2018
• Gagnon, M., & Stuart, M. (2008). "Manufacturing disability: HIV, women and the construction of difference." Nursing Philosophy, 10, 42-52.
• Susan Leigh Star and Geoffrey C. Bowker, "Enacting silence: Residual categories as a challenge for ethics, information systems, and communication"

WEEK 8 (May 25): Lay Expertise: Care Activism and Participation in Knowledge Formation

Readings:

• Lindsay Prior , "Belief, knowledge and expertise: the emergence of the lay expert in medical sociology"
• Paola Sesia "Women Come Here on Their Own When They Need to", Medical Anthropology Quarterly, June, 1996
• Arthur Kleinman, Culture, Illness, and Care
• Michael Fine & Joan Tronto 2020 "Care goes viral: care theory and research confront the global COVID-19 pandemic" 
• N. J. Fox, et al, "The 'expert patient': empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the Internet"
• Steve Epstein (1996) Impure Science: AIDS, activism, and the politics of knowledge, (Selections) "Introduction"

Alternative/Additional Reading:

• Alison Kafer, "At the Same Time, Out of Time: Ashley X" from Feminist, Queer, Crip
• Margaret Mead, "Research with Human Beings: A Model Derived from Anthropological Field Practice"
• Anne Fadiman, Ch 17-Ch19 of The Spirit Catches You and You Fall Down
• Luis Camnitzer, Art and Literacy
• Cathy Charles and Suzanne DeMaio, "Lay Participation in Health Care Decision Making: A Conceptual Framework," Journal of Health Politics, Policy and Law, Vol. 18, No.4, Winter 1993
• Joëlle Kivits, "Researching the 'Informed Patient"

WEEK 9 (June 1): No Seminar Meeting--final paper/project discussions

Reading:

Alternative/Additional Reading:

Week 10 (June 8): Care and Design

Reading:

• David Gissen, "Introduction" and "Chapter 5: Disabling Environments" in The Architecture of Disability
• David Gissen, Disability as architectural criticism — Yale/Rudolph
• Rosemary Garland-Thomson, "Misfits: a Feminist Materialist Disability Concept"

Alternative/Additional Reading:

• Evan Calder Williams, "The Honeyed Siphon" The New Inquiry Magazine Vol. 35, Dec 2014
• Guy Dewsbury et al "Depending on digital design: extending inclusivity"
• Myriam Winance, (2010). "Care and Disability: Practices of Experimenting, Tinkering with, and Arranging People with Technical Aids" in Mol, Mose, Pols, eds,Care in Practice
• Ariana Eunjung Cha "The Human Upgrade: The Revolution Will Be Digitized" The Washington Post, May 9, 2015
• Devlieger-et-al, Blindness and the Multi-Sensorial City
• Sophie Bowlby et al, "'Doing Home': Patriarchy, Caring, and Space"
• Hamraie "Designing Collective Access: A_Feminist_Disability_Theory of Univeral Design"
• Hamraie "Universal_Design_Research_as_a New_Materialist_Practice"
• Tanya Titchkosky, selections from The Question of Access
• Jos Boys, Doing Disability Differently
• Rob Imrie, "Disability, embodiment and the meaning of the home"

 

Networked and Distributed Care

Readings:

• Michael Hardey, "'E-health': the Internet and the transformation of patients into consumers and producers of health knowledge," Information, Communication & Society 4:3 2001
• Ofelia Schutte, "Dependency Work, Women, and the Global Economy" in Eva Feder Kittay and Ellen Feder, edThe Subject of Care
• Gunther Eysenbach,"Credibility of Health Information and Digital Media: New Perspectives and Implications for Youth"

Alternative/Additional Reading:

• Alfred Katz, "Self Help and Mutual Aid: an Emerging Social Movement?"
• Joëlle Kivits, "Everyday health and the internet: a mediated health perspective on health information seeking"
• Patricia Radin, "'To me, it's my life': Medical communication, trust, and activism in cyberspace"

Final Paper Due: Thursday, June 15th